Usher Type I & Sense of Balance

Growing up, my mother would keep rushing to steady my tilting cup to prevent spills. I thought she was just being over-cautious because she’s a very clean person. Entering adulthood, friends and now my husband continue to steady my cup.

Just this week, at a first meeting, a sommelier tried to teach me how to swirl a wine glass property, and he couldn’t.

Then, it dawned on me that this is due to the lack of my sense of balance.


Usher & Running

This was a question for an Usher Syndrome Support Group. But I’m sharing this as an FYI for you.

A question:

Yesterday, I went to SMU track to do a photo shoot. I was a track & cross-country runner in high school. After not having run on a track since college, I believe, (and I’m now 37) I discovered that it was almost impossible to run on the track. Very difficult to stay within a lane, between two lines. And scary.

This goes along with my previous discovery. The last time I ran with a friend. I was no longer able to follow her.

Any one of you have had this similar experience? Unable to keep your eyes on an object: for example, the lines on a track & a person in front of you?

One more example: running on the track was so difficult that we decided to try running (with longer strides) on a football field in a city park. Still difficult. Couldn’t keep my eyes on the goal post on the other end of the field. Scary.

Looks like the object, on which I set my eyes, disappears as it goes through my enlarging blind spots as I run (bouncing- moving upward & downward). Also, looks like I struggle more with perception- the distance between me and the object in front of me.

Losing the object and having tricky perception explain why it is difficult & scary. I kept stopping running (to refocus), fearing that, for example, I’d hit the goal post or going too far and into the parking lot beyond the field.

Usher Syndrome & Gym

A funny story to share: On Tuesday, after work, my husband Sam Dunn had other plans, so I went to gym alone, which is often, with my white cane. I did a cardio workout on a treadmill. Then, I went to do weight-lifting for legs. I alternated between two machines. On the last set, I almost sat on a person, not having known that the person had taken the machine while I was using the other machine…